Publications
CHDResources.org
supporting those with heart defects


Copyright 2002-2013 California Heart Connection.  All rights reserved.






Journal Articles:

How Not to Tell Parents About Their Child's New Diagnosis of Congenital Heart Disease: An Internet Survey of 841 Parents. Hilton-Kamm D, Chang RK, Sklansky M. Pediatr Cardiol. August 2013 (DOI) 10.1007/s00246-013-0765-6 (Epub ahead of print.)

Prenatal diagnosis of hypoplastic left heart syndrome: impact of counseling patterns on parental perceptions and decisions regarding termination of pregnancy. Hilton-Kamm D, Chang RK, Sklansky M. Pediatr Cardiol. 2012 Dec;33(8):1402-10. doi: 10.1007/s00246-012-0366-9. 

Abstracts:

Counseling following the diagnosis of congenital heart disease: impact of the cardiologist’s demeanor and terminology. Hilton-Kamm D, Sklansky M, Chang RK. Poster session presented at: American Heart Association Scientific Sessions 19, November 3-7, 2012, Los Angeles, CA

Perceptions of survival and life expectancy impacted by termination counseling for parents receiving a prenatal diagnosis of Hypoplastic Left Heart Syndrome. (Abstract F39) Factors associated with parents' perceptions when receiving their child’s diagnosis of hypoplastic left heart syndrome. (Abstract F40) Hilton-Kamm D, Sklansky M, Chang RK. World Journal for Pediatric and Congenital Heart Surgery. Vol. 2, No. 1. Abstracts from Cardiology 2011, 139-192. Poster presentation presented at: Cardiology 2011, Scottsdale, AZ.

Medical Newsletter Articles:

Invited Article: Hypoplastic left heart syndrome and the myths of informed consent. Hilton-Kamm, D. American Academy of Pediatrics Bioethics Newsletter. Fall 2012;14-17.

Improving communication and outcomes for children with complex congenital heart disease using parent information-seeking behavior. Hilton-Kamm, D. Congenital Cardiology Today. 2012;10(3):11-14.

Caring for a child with congenital heart disease; practical tools and resources. Hilton-Kamm, D. Congenital Cardiology Today. 2006;4(2):9-12.

Receiving a child’s diagnosis of complex CHD: parents’ perspectives and communication tools. Hilton-Kamm, D. Congenital Cardiology Today 2005;3(12):12-16.