supporting those with heart defects
Copyright 2002-2013 California Heart Connection. All rights reserved.
How Not to Tell Parents About Their Child's New Diagnosis of Congenital Heart Disease: An Internet Survey of 841 Parents
. Hilton-Kamm D, Chang RK, Sklansky M. Pediatr Cardiol. August 2013 (DOI) 10.1007/s00246-013-0765-6 (Epub ahead of print.)
Prenatal diagnosis of hypoplastic left heart syndrome: impact of counseling patterns on parental perceptions and decisions regarding termination of pregnancy
. Hilton-Kamm D, Chang RK, Sklansky M. Pediatr Cardiol. 2012 Dec;33(8):1402-10. doi: 10.1007/s00246-012-0366-9.
Counseling following the diagnosis of congenital heart disease: impact of the cardiologist’s demeanor and terminology.
Hilton-Kamm D, Sklansky M, Chang RK. Poster session presented at: American Heart Association Scientific Sessions 19, November 3-7, 2012, Los Angeles, CA
Perceptions of survival and life expectancy impacted by termination counseling for parents receiving a prenatal diagnosis of Hypoplastic Left Heart Syndrome. (Abstract F39) Factors associated with parents' perceptions when receiving their child’s diagnosis of hypoplastic left heart syndrome. (Abstract F40)
Hilton-Kamm D, Sklansky M, Chang RK. World Journal for Pediatric and Congenital Heart Surgery. Vol. 2, No. 1. Abstracts from Cardiology 2011, 139-192. Poster presentation presented at: Cardiology 2011, Scottsdale, AZ.
Medical Newsletter Articles:
Hypoplastic left heart syndrome and the myths of informed consent
. Hilton-Kamm, D. American Academy of Pediatrics Bioethics Newsletter. Fall 2012;14-17.
Improving communication and outcomes for children with complex congenital heart disease using parent information-seeking behavior.
Hilton-Kamm, D. Congenital Cardiology Today. 2012;10(3):11-14.
Caring for a child with congenital heart disease; practical tools and resources
. Hilton-Kamm, D. Congenital Cardiology Today. 2006;4(2):9-12.
Receiving a child’s diagnosis of complex CHD: parents’ perspectives and communication tools.
Hilton-Kamm, D. Congenital Cardiology Today 2005;3(12):12-16.
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